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Bracing Patient Resources
- Patient/Peer Support and Education
- Patient to Patient Connections
- Feel free to reach out to our Mental Health Coordinator if you’d like to connect with a former patient or their caregiver to hear about their experience, discuss surgery expectations, recovery tips, items they brought to the hospital, and what they found helpful.
- Parent/Caregiver Support
- Parent to Parent USA (P2P) | P2P connects parents of children with special needs, including those with scoliosis, to trained support parents who have faced similar challenges. They offer emotional and informational support, fostering a sense of belonging and understanding. You can find support near you through their website.
- This blog lists online communities for parents seeking support and advice. Platforms like Facebook host various groups where parents share experiences and resources. For instance, “Mommies of Miracles” is an international, peer-driven support group for mothers of children with complex medical needs.
- Parent Support Groups | National Alliance on Mental Illness (NAMI) | NAMI offers support groups like the Family Support Group, which provides a safe space for parents to share experiences and coping strategies. This can be particularly beneficial for parents navigating the emotional aspects of their child’s health journey.
