Useful Links
Additional Resources:
App: Scoliosis Tracker for iPhone and iPad
- Book: Scoliosis: A Guide for Parents and Families
- Book: Safety in Spine Surgery
- Book: What to Expect: Your Child’s Spine Surgery
- Book: What to Expect: Neuromuscular Scoliosis Surgical Intervention
- Book: What to Expect: Non-Operative Care
- Book: Straight Talk with Curvy Girls
- Book: Straight Talk Scoliosis: The Journey Continues
- Activity & Coloring Book: Finding Curvy Girls, My Scoliosis Journey
- Sleeping Comfortably While Managing Your Scoliosis
- Amil Frame
- Noel Frame
- Infantile Scoliosis Outreach Program
- Infantile Scoliosis Book “Cole and the Crooked Flower”
- National Scoliosis Foundation
- Scoliosis Research Society
- Setting Scoliosis Straight
- Curvy Girls Support Group
- Q&A with Dr. Vitale and Curvy Girls
- SHIFT scoliosis
- Scoliosis Quarterly
- espine.com
- iscoliosis.com
- Muscular Dystrophy Association
- SMA Foundation
- Weinberg Family Cerebral Palsy Center
- Cerebral Palsy
- View the conservative care pamphlet that is about the conservative care program.
- Schroth Scoliosis and Spine Physical Therapy: www.scoliosisandspinept.com
- NY Times Article
- NewYork-Presbyterian Hospital Patient and Visitor Guide: Preparing for Your Child’s Stay
- NewYork-Presbyterian Hospital Patient and Visitor Guide: During Your Child’s Stay
- NewYork-Presbyterian Hospital Patient and Visitor Guide (Spanish)
- NewYork-Presbyterian Patient and Visitor Guides
- PreSurgical Tour
- A Child’s Surgery: What to Expect Videos
- Scoliosis in the Young Child Patient Webinar presented by the Scoliosis Research Society (SRS)
Video Resource:
Watch the video, below:
Pediatric Orthopaedic Spine Surgery Pre-Op Class
Anterior Vertebral Body Tethering (AVBT) Resources:
- Vertebral Tethering
- A Tale of Two Spines
- App: Scoliosis Tracker for iPhone and iPad
- Book: Scoliosis: A Guide for Parents and Families
- Book: Safety in Spine Surgery
- Book: What to Expect: Your Child’s Spine Surgery
- Anterior Vertebral Body Tethering for Idiopathic Scoliosis
- Growth Modulation for Childhood Scoliosis: From Where Have We Come, and Where are We Going?
- Growth Modulation by Means of Anterior Tethering
- Multilevel Spinal Growth Modulation With an Anterolateral Flexible Tether in an Immature Bovine Model
- Spinal Growth Modulation With an Anterolateral Flexible Tether in an Immature Bovine Model
- The Tether Patient Brochure
- Vertebral Body Tethering VBT in Pediatric and Adult Spinal Deformity Scoliosis Research Society
- myscoliosis.com website featuring The Tether™—Vertebral Body Tethering System: educational animations, downloadable patient brochures and clinical data
Brace Resources:
- The undershirt you wear underneath the brace is very important. Something relatively tight fitting, seamless, and sweat wicking are all qualities to look for. This can greatly increase the comfort.
Websites that sell comfortable tank tops for underneath the brace: - You can find some clothing recommendations in the book “Straight Talk With The Curvy Girls”. There is a whole section of the book devoted to how to make it easier to dress with a brace on. http://www.straighttalkscoliosis.com/index.html
- Always bring your brace, x rays, and appropriate clothing with you to your visit with the doctor and the orthotist. An example of clothing would be a snug fitting t shirt and leggings.
- Call your orthotist immediately if you are having brace fit issues. You do not need to wait to see the doctor for these issues to be resolved.
- Always make sure that your brace is on correctly. In most bracing systems the waist is well defined and this should be the landmark for correct brace wear. If the waist is positioned properly the rest should fit as designed. Fitting the RSC brace lying down can make a big difference.
- View the conservative care pamphlet that is about the conservative care program.
Casting Resources:
- Amil Frame
- Noel Frame
- Infantile Scoliosis Outreach Program
- Infantile Scoliosis Book “Cole and the Crooked Flower”
Growing Rods Resource:
MAGEC Resources:
- https://www.nuvasive.com/procedures/spine/magec/
- http://www.nydailynews.com/life-style/health/docs-medical-magec-treat-boy-scoliosis-article-1.1904020
- http://newsroom.cumc.columbia.edu/blog/2014/05/27/treating-kids-severe-spinal-deformities-magnet-replaces-scalpel/
- http://www.beckersspine.com/spine/item/21951-dr-michael-vitale-completes-ny-s-1st-scoliosis-surgery-with-magec
VEPTR Resource:
Videos:
- Vitale POSNA 2019 Podcast
- Application of a Derotational Cast for Infantile Scoliosis
- Using Power to Make Pedicle Screw Insertion Safer
- Primary Multilevel Wound Closure in Scoliosis
- Tips and Tricks for Derotating the Spine in AIS
- MAGEC Insertion vs Serial Lengthenings
- The Orthopedic Management Spinal Muscular Atrophy: New Treatments…Next Steps
Fiction Books:
- Braced by Alyson Gerber
- Dear Isaac Newton You’re Ruining My Life by Rachel Hruza
- When Life Throws You a Curve by Elizabeth Golden
- I’m Bent Not Broken by Caroline Bielen
- Deenie by Judy Blume
- Cole and the Crooked Flower
- Being Grace by June Hyjek
- Beautiful Crooked Letter I by Shae Smith